Healing And Recovery

As I had mentioned in my last post, it had been a couple of weeks since I have taken my medication and been on a proper schedule to keep the A1AD in check, and now I am paying the price for that.  My lungs are stinging when I breathe, my muscles have been catabolized, the tendons in my joints feel like they are tearing just from bending them normally, my eyesight has gotten worse, my hearing has drastically decreased, and of course, my cognitive function has definitely diminished!

With this type of genetic disorder, relief does not come at a single dose of medicine, or one day of being back on an adjusted lifestyle and schedule.  Healing and Recovery are cumulative, and come by many weeks and months of proper diet, medication, exercise and sleep!  It is cumulative; it takes time.  And it must be consistent.  Any interruption, even missing one day, will set healing right back to the beginning! 

So please, if you know of people suffering from genetic disorders, have patience, and do not get them off their Healing regiment!!!!  Do everything you can to help them stay on their programme for Recovery, please!

A Rough Couple Of Weeks

 A couple weeks ago, my wife was worried because the baby in her womb stopped moving.  It took me several times of asking her to go to the hospital, but she finally consented.  And we got the worse news!  The child had passed.  It was almost full term, and it would be born now.  It is so difficult, when you see your baby fully developed, and looking beautiful.  When you hold him in your arms!

It was a horrible experience in the hospital for my wife.  She was treated so horribly by the doctors and nursing staff, it was shameful for me being Canadian, for my wife to be treated so terribly.  The racism and sexism was far too extreme to be believed!  My wife no longer wants to live in this country.

We had the funeral recently, and are now going through the aftermath of the tragic event.  It is a sad time for all of us, especially for my wife.  

As for me, being A1AD, my muscles have deteriorated, my chest stings, My breathing is poor, my liver has swollen, my body is in pain, it is difficult to even focus on writing this simple post, and all the regular symptoms have returned.  This stress has certainly taken it's toll.