I moved out into the countryside, so I could have a relaxing end to my life. A1AD has progressed enough to make living a normal life difficult. My muscle tissue is very weak, and even something as simple as sneezing or coughing, can cause muscles to tear. Yet, I am happy!
This blog began to share my adventures as I cycle, paddle, and ski across Canada, to raise awareness of Alpha 1 Anti-trypsin Deficiency. Because of a decline in health, I have just decided to blog a few things here and there about life in general, from this Alpha's point of view.
Saturday, May 15, 2021
Monday, May 10, 2021
Oh, To Be Able To Work
I miss working.
Alpha 1 certainly limits what a person can do. I usually have enough energy to go until noon, then I am out of energy for the day. It is tiring. So, I like to get up early, and work in the mornings, before my energy runs out for the day. Of course, many interruptions in the morning working hours, do limit the amount of work I can get done.
Last week, I was able to get 3 days of work. Three days might be something, but it is not much! It is difficult to earn a living, when you are only allowed 3 days of work a week, many weeks, not even that much!
I really hate not being able to work!